The Indian American

19 THE INDIAN AMERICAN OCTOBER-DECEMBER 2018 people who work for small companies cannot take even unpaid leave with no threat of a job loss. And some immigrants covered by the act may be on visas or in situations that make it hard to leave the United States and return. The three months passed in a blur of scans, blood tests and other exams, chemo sessions, hospital rooms and oncologist appointments. Having my mom's friends and neigh- bors visit often was com- forting. When my leave ended, my mom and I returned to the United States. Her chemo was not complete, and it had not reduced the tumors in her lungs. Her Indian oncologist had given her only three months to live. In the United States, we could continue her chemo and search for other treatments. My mother moved in with my brother in August and was able to get a green card sponsored by my brother, which meant she could get insurance to cover some of her chemotherapy and unrelat- ed care such as dental work. While the tumors were not shrinking, at least they were not growing rap- idly. The oncologists could not say for sure whether the drugs were helping or whether the tumors were just slow-growing, though the consensus seemed to lean to the latter. Perhaps, we thought, we could get her into a clinical trial that might help. With the many hospitals and research centers in the Washington area, my mom came to live with me and join a trial. - - - From October 2014 until she died 14 months later, my mom enrolled in three trials. She underwent painful biopsies, numerous tests, hospital stays and chemotherapy. In the midst of it all, we managed a fair- ly stable household routine. I would ask for early-morn- ing appointments for scans and tests so I could race to work after they were done. Some days, I worked from home so I could get her to and from the chemotherapy sessions. My mom did not suffer too many side effects, apart from fatigue. She cooked wonderful meals for us, and I took over during the weekends. When I was at work, she took walks when she felt up to it, read the daily paper and books, and

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